Living with Chronic Fatigue Syndrome

Doctors can’t put a name on it and they don’t understand what I’m talking about because they can’t produce the pain on palpation any where on my body. It’s not a “palpable pain.” It’s a feeling in my muscles. I used to call it “back pain” but now I’m calling it “muscle pain” in the hopes that some doctor will figure out what’s been going on with me for the past 7 years.

I have a horizontal strip right across my back and just under the bra line that feels extremely fatigued. So much so that I can’t even sit up straight at times. Pain medication will take it away for a short while but I have to limit how often I take the medication as well as limit how many I take in a day. I also use muscle relaxants because my muscles are so tight and hard from constantly dealing with this fatigue/pain that they get rock hard, don’t work, swell, go into spasm, etc., and that makes things worse. Why is it that none of these doctors seems to know what’s going on? Haven’t they ever heard of a muscle becoming so fatigued that a person can feel that and just has to lie down? I don’t know what to do. I can’t work without using pain pills and I’d like to stop taking them but now I’m dealing with this more frequently even when I’m not working.

Is anyone else dealing with this type of fatigue/pain?

What am I doing wrong when it comes to speaking with these doctors? Do I have to keep the explanation of what I’m feeling down to only one sentence? Ok, It’s muscle fatigue, I can’t stand it, I’ve lived with it for 7 years now. I need to go on disability!

If it’s not my bones and if it’s not my muscles causing this pain then what else is there?