Living with Endometrial Cancer

Please forgive typos and spelling errors. 3 years ago my pap revealed “pre-cancerous cells”. My doctor put me on Megace for 3 months, and that seems fix the problem.

Spring 2007, my exam showed everything normal, but I happened to mention to my doctor that I had slight bleeding for a week, a few months prior.

I was 54 years old. I never caried a baby to term. I thought it was the last bang of menapause-no big deal. He wanted to do anothe D&C. Groan. The labs came back Stage I, uterine cancer. A hysterectomy should take care of it. I had that dome in October 2008. No cancer was found anywhere else. My biopsies were taken from lymph nodes. All came back clean. Time to celebrate!

Two weeks later, the pathology came back that Stage III cells were found at the entrance of my fallopian tube. Initially it was believed that it was pushed there during scopic.Da Vinci surgery. Bottom line is that nobody knows how the cells got there. I talked to 8 doctors..oncologists, radiologist pathologists, gyns. I was hoping to fine someone would tell me for sure that the cells were pushed there. I was given suggestions for treatments from nothing, to chemo to radiation.

I did NOT was to poison my body with treatment for something that I might not even have.

My diagnosis is now endometrial cancer-not uterine cancer as was originally. I have completed my second chemo treatment I need 6 treatements every 3 weeks) . My hair is gone. I feel bad. On days 4, I have nuerological pain from my waist down. (this happens to about 15% of patients) On day 5, the pain is from my knees down, and on day 6 its from my calves down. The pain meds Percocet 325 mg I have now are ok, but have to be balanced with laxatives. I quit my job. I hate this treatment at University of Michigan Hospital. The hospital and staff are great. I hate the treament’s side effects. Does anyone know of a similar situation where treatment is given for POSSIBLE errant cancer cells? Best to all of you cancer sisters