Living with EndometriosisThis section is a place to share stories about Living with Endometriosis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download it wasn’t in my head well it all started when i was only young when i got my periods i would be very ill like throwing up and the pain was unbearable i was told there was nothing wrong it must be in your head. then when i was older i had more time off work and the pain was absolutly horrible but i got told by a specialist that it was wind pain. when i was 19 i fell pregnant then lost the baby at 13 weeks. i was sad the doctor did a procedure but nothing was said. so i went on as normal bad pain heavy bleeding to the point i had to wear two maternaty pads all the time. then i fell pregnant again a few years later and once again lost the baby. i had a procedure done just like the last one and then i was told i had PID so that was the answer to all the pain. yes i thought it’s not in my head. then after losing 6 babies, i went to a doctor and just said i’m not leaving this office until you find out why this keeps happening, then he did all these tests nothng showed then he went and did a laperoscpoy [laparoscopy] then it found it all. when i woke from the surgery i was told that i would have to come back the next week to have major surgery to have it all removed. it said it was as thick as leather and he couldnt cut through it. it was inbedded into everything you could think of. i lost some of my bowel. then it had actually pushed my womb over so he had to stich that up so it sat right. thats why i had lost so many babies and it was like a forrest he said. so i went through the biggest operation ever in my life. then a few months later i wanted to try to have a baby with my husband at the time so the doctor said you will have to go IVF. we started the first lot of treatments then about 1 month later i fell pregnant naturally. we were so happy but i was scared thinking i might lose this one but i spent 7 months in hospital, nearly lost my baby twice, but she is a heathly 6 year old girl. but 5 months after her birth i had to have a hystorectomy. but he left my ovaries because of my age. but after 6 years its all starting again so i have to have my ovaries out now. i can handle that because i cant handle the pain anymore so it wasnt in my head at all. Comments
June 2007
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