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Living with Endometriosis

This section is a place to share stories about Living with Endometriosis

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Sometimes, the fear is the worst symptom of all.


by: Jenna on Fri, Dec 21 2007

I am 25 now and was diagnosed with endometriosis four years ago. The doctor declaired that I had the disease for much longer (his estimation was since I was 13/14). I went in for surgury for a difinitive diagnosis. While “in” the doctor also removed a two inch fibrous tumor.

My symptoms did not lesson. My bleeding turned to hemorrhaging and the pain was unbearable. I was put on OCPs (birth control) continuously for nine months. I had sever break through bleeding, and my dose needed to be increased. Again, I did not respond. Now, i am in a waiting cycle. I do not know what the next step will be. The pain has gotten worse. I have had to miss school and other social events because of the pain (and at times, heavy menstruation).

I’m scared. There are nights I want to sit alone and cry. I don’t want a hysterectamy [hysterectomy]. I don’t want to be in pain. I don’t want endometriosis.

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December 2007

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