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This section is a place to share stories about Living with Fibromyalgia.
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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Living with narcolepsy, fibromyalgia, and others
by: Cat
on Wed, Aug 01 2007
Where did I GO? I have Narcalepsy [narcolepsy], Cataplexy, Fibromyalgia, Myofascial pain & a few more problems. I was top in my field of work, making $80,000.00 a year. I started passing out, stayed in such severe pain in my back,neck, lower back,legs,etc. Then I couldn’t manage the computer, I would forget everything, & I would just cry my eyes out. I worked for a Corp. & to them I was just a #. Needless to say, I had to resign or get fired. I went to all the right Doctors, got these horrible results. I screamed at them that they were lying, & then I hid in my house for a year. I applied for Disabiliy [disability], was turned down twice & now I have hired a Lawyer. I had to sell my home of 35 years because I ran out of money. Along with all that there was the awful time with my girls & my family. Are you on drugs? What is wrong with you, you already told me that story 3 times, Why aren’t you working? It was the most horrible time I have had. No one believes you about anything. i can’t even see any of my friends because I don’t remember their names or because I am embarrased. Where is the Woman that I knew? The one that was full of laughter, top in my line of work, everywhere I went I was known.
Why can’t the doctors keep me out of pain? No one should hurt like this every minute of their life. But The old me was a fighter, & that stayed with me. My faith in God got stronger when I remembered. My girls after 2 years are now my biggest support group. I take my life by the minute now. I am having trouble driving now. I take a very strong depressant that has helped so much. There is so so much more that is in my story but I am getting forgetful. My advise is good Doctors, fight for Disability, & let God lead you. I still hide in my 500 sq ft home. But I pray for good days.
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August 2007
- fibromyalgia - by c.s - (Tue, Aug 28 2007)
i read about this in the news paper one day and i talke to my mum about it and she said that what she has soi started to recurch and every thing i have are the symyoms. this site really helped me to understand what it is.
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- fibromyalgia - by jeri - (Mon, Aug 20 2007)
i started experiencing pain 2 to 3 years ago. last year i got to the point where i started falling. i have been thro so many tests, with no diagnosis i put all my symptoms in the computer and it always comes up ms lubus [lupus], rheumatoid arthritis, or fibromyalgia.
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- fibro - by lesley - (Thu, Aug 16 2007)
hi. i was ill for 8 months my doctor keep saying it was flu but i knew that something was wrong. had all test done and they came back ok. he still was saying it was flu so i changed doctors.
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- For Cassandra from a mom w/ FMS - by FMS Mom - (Tue, Aug 07 2007)
I am a mom w/ severe FMS [Fibromyalgia]. Have had it at least 10 years. I have two young children. Cassandra your story touched me so much because I really saw my disease from a child’s perspective. I wanted to offer my support to you. You are right - your Dad’s guilt and sorrow over not being the father he wants to be to you is likely his biggest sorrow - far surpassing the physical pain of the disease.
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- Fibromyalgia - by Audrey - (Tue, Aug 07 2007)
I’ve had it for years but it was never diagnosed. Then I had a lot of stress and since then I’ve had just about every ache and pain that is in your fibromyalgia article. I’ve been under the care of several doctors and have had much physical therapy
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- I have never been this sick - by Sandra - (Mon, Aug 06 2007)
Hello my name is Sandra. Back in late March 2007 I woke up and I could not move, I felt like I had the flu high Temp 103, I was in bed for 1 week lost 20 lbs. I went to the doctor and was told I had Hepatitis A. It is now 4 months later I am still off work and in so much pain.
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- hope for children with fibromyalgia - by P C - (Mon, Aug 06 2007)
When my son was in second grade he got up one morning and could not stand for me to brush his hair. He said it hurt real bad. He could not stand for us to touch his head. We went to our family doctor and he referred him to a doctor in Memphis Tennessee. He took a look at him and took one blood test and told us he had fibromyalgia.
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- My dad and fibromyalgia - by Cassandra J - (Mon, Aug 06 2007)
I dont have Fibromyalgia but my dad does…. I watch him go through every day in pain…. I know that he always depressed…. I notice alot that he feels because of this my dad feels that hes not a good father to me…. i tell him he is all the time but he never listens… hes had this disease for 5 years and i would do anything to make this go away… my dad has had many surgeries and none of them seem to help….
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- Living with narcolepsy, fibromyalgia, and others - by Cat - (Wed, Aug 01 2007)
Where did I GO? I have Narcalepsy [narcolepsy], Cataplexy, Fibromyalgia, Myofascial pain & a few more problems. I was top in my field of work, making $80,000.00 a year. I started passing out, stayed in such severe pain in my back,neck, lower back,legs,etc. Then I couldn’t manage the computer, I would forget everything,
[more..]
- We need support too - by Janelle - (Wed, Aug 01 2007)
I, like so many went undiagnosed for many years. I knew something was terribly wrong around 1992, as I was having new symptoms and my migraines were becoming more frequent and severe. I had been married for 21 years and it was a good marriage, with 2 wonderful children.
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