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This section is a place to share stories about Living with Interstitial Cystitis
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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July 2007
- ic patient - by E.L. - (Sun, Jul 29 2007)
The ic symptoms started very hard and painful like two years ago. I was in emergency every month with pain and infection, the doctors did all kind of studies of my kidneys and they were ok.
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- I have had problems with my bladder for almost a year now - by JLA - (Sun, Jul 29 2007)
I have had problems with my bladder for almost a year now. For months i was seeing the Doctor for bladder infections and they keep on giving me antibiotics until I eventually went to the hospital and the doctor told me I didn’t have a bladder infection and told me to be referred to an urologist
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- Bladder irritation - Water Quality. - by Chris - (Thu, Jul 26 2007)
I have found that drinking distilled water does not irritate my bladder. Hard water, on the other hand, is so irritating that I know when the first drop enters my bladder. I have also found that fish oil suppliments can also be irritating.
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- a hell of a life - by r - (Wed, Jul 25 2007)
this is going to be 3 years wiyh i.c. [interstitial cystitis]. Like every body else i didn’t know what it was. Took me 3 urologist in 10 months to find out that i had interstitial cystitis One day i just wake up like that and since that day its been like that, some days better than others.
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- Improper Diagnoses until IC Discovered - by Ruth - (Mon, Jul 02 2007)
I have had bladder problems since I was in grade school, and I’m 26 now. I had been to urologists in the past and all they told me after much testing was I had an overactive bladder Medications didn’t work and I had lost all hope.
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