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Living with Interstitial Cystitis

This section is a place to share stories about Living with Interstitial Cystitis

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Living with IC


by: Missie on Mon, Jan 07 2008

My name is Missie. I am desperate to find someone to talk to that suffers from IC. I have been diagnosed with IC about 6 months ago, after suffering with what I thought were bladder infections for 4 years. The pain is excruciating and no one seems to understand what I go through.

I’ve been taking Elimron for 3 months and… NOTHING! Still suffering. Now I wear diapers when I’m flared up, cause I have to go to the bathroom in excess of 60 times a day! I’ve even started drinking Baking Soda and water it does help the pain, but it’s a short term effect to a life-time problem. Any other suggestions? Thanks!

Comment on this

Comments
  1. Tue, Jan 22 2008
    Denise, I'm fortunate to have a doctor that understands IC very well. She was diagnosed with a moderate to severe case. The last time I visited her, ...Read
  2. Thu, Jan 17 2008
    Hi Missie, I can completely understand your pain. I was diagnosed with this condition in 1995. This was after many years of testing negative for UT...Read

January 2008

  • 54 and recently diagnosed - by P.G. - (Mon, Jan 28 2008)
    I’ve had the frequency of going to the bathroom for a couple of years and recently had a cystoscopy and diagonsis of I.C. [more..]
  • Chronic IC Sufferer - by Denise - (Thu, Jan 17 2008)
    Hi, my name is Denise and I was diagnosed with IC in 1995. My primary physician recommended that I see a Urologist due to the repeated negative UTI results. [more..]
  • anaesthesia and Hydro/cysto - by Tracy - (Mon, Jan 14 2008)
    It is very important to have anaesthesia when you are undergoing a Hysto/Cysto when there is IC suspected. [more..]
  • IC sufferer - by JVDL - (Tue, Jan 08 2008)
    well missy…go and see a specialist like i did, they prescrbe little orange pills wich take away all pain and most symptoms! [more..]
  • Interstitial Cystitus - by JV - (Tue, Jan 08 2008)
    hello! im 13 and i suffer from Interstitial Cystitus [cystitis]…i was diagnosed on 9 with this and the specialist and my doctor was baffled beacuse i was so young, so a few months later i was in hospital to get a operation where they insert a camera into your bladder. [more..]
  • IC Symptoms Gone - by pm - (Mon, Jan 07 2008)
    12/24/07, Let me begin by telling you that I am 57 years old and have had IC for about 20 years, if not more. It started slowly with strange feelings, like tingling, but very seldom. I was about 30+ years old at the time when these symptoms started. [more..]
  • Living with IC - by Missie - (Mon, Jan 07 2008)
    My name is Missie. I am desperate to find someone to talk to that suffers from IC. I have been diagnosed with IC about 6 months ago, after suffering with what I thought were bladder infections for 4 years. [more..]
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