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Living with Interstitial Cystitis

This section is a place to share stories about Living with Interstitial Cystitis

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IC and all ages


by: Brooke on Wed, Mar 05 2008

As i was reading these stories of other people having IC I realized many of you all are older with kids and all. I decided to write my story and show younger people they are not alone either. I am a 17 year old girl that has IC and it really affects me.

For about 2 years I was living with IC that was affecting me everyday. I complained many times but my parents, doctors, no one knew what could be the problem. They did many tests and everything usually came out negative. This past year they had officially diagnosed me with IC from the test taken in the hospital. But it wasn’t until months later they got the news back to my doctor. I still have yet to get medicine from the long process and uncaring people around.

I urniate about 4 times every hour. That is to say the least. I can have my good days and I can have my bad days. Like all others with IC, that is just one of the symptons we have. I hate that I have to plan my moments in my life around me having to go to the bathroom. How long I can take at one place. What food I can and can’t eat. etc. I feel no one is aware of what people with IC are living with; and what is going on, including proffesionals. My only hope is people become more aware of IC. Thank you for reading this.

Comment on this

Comments
  1. Wed, Mar 12 2008
    I am sorry that you are have IC at such a young age. I went to four doctors before I was diagnosed. I have only been on the medication that they give...Read

March 2008

  • botox and cystitis - by E - (Mon, Mar 31 2008)
    I had botox put into my bladder six months ago for I.C and it is the best thing i have ever done, i can now lead a normal life and am due my check up last day of march. [more..]
  • After 4 Yrs of IC Pain… - by Terri - (Thu, Mar 27 2008)
    And very poor support from Kaiser Permanente Urologists of Denver.. I finally hired one of Denver’s premiere “private” Urology Specialists to gain the proper IC diagnosis… Denver Kaiser Urologists didn’t care if I had an IC Diagnosis…! [more..]
  • Was healthy until … - by ddscrazy - (Wed, Mar 26 2008)
    I had a hysterectomy and then got a hernia from doing to much afterward.Had hernia repair with mesh in2005 thenin 2006 had to have mesh taken out,repair hernia again and another mesh put in, still havong prroblems with the mesh and now have been diagnosed with I.C. [more..]
  • Living with IC. - by AMG - (Mon, Mar 17 2008)
    I am a 27yr old female that was diagnosed with IC 7 years ago. I have seen 8 different urologists,some at the best hospital’s in Boston that specialize in IC. [more..]
  • IC - by VF - (Mon, Mar 17 2008)
    I was finally diagnosed with IC after years and years of being mis diagnosed. I am only 26 and it has taken over my life. Some days are good..some are bad and most of them are bad. [more..]
  • Not the fairytale begining… - by Elizabeth - (Wed, Mar 12 2008)
    I got married in October 2007 to an American soldier who had just spent his second tour in Afghanistan. While he was gone I was experiencing urgency and frequency as I have for the past ten years. In early January 2008 my symptoms became unbearable. [more..]
  • IC Headache - by Ebony - (Thu, Mar 06 2008)
    For the last few years I had been struggling with sharp painful abdomen pains and everytime I would go see my OB-GYN, he would run test and evrything always came back negative. So finally last year after he found a cyst on my ovary he did a laprascopy and notice adhesions. [more..]
  • HELP - by NANCY - (Wed, Mar 05 2008)
    I HAVE HAD IC FOR ABOUT 10 YEARS AND IT SEEMS THAT EACH DAY IT IS GETTING WORSE. I HAVE TRIED EVERY MEDICINE OUT THERE AND NOTHING SEEMS TO WORK. [more..]
  • Continuing symptoms Of cystitis - by Jennifer - (Wed, Mar 05 2008)
    I was diagnosed wtih intersitial cystitis when I was about 17, right after my son was born. I am now 36 y.o. I have had extreme, though less bouts of pain and each time all urinalysis show lack of infection, though blood in urine occurs occasionally. [more..]
  • IC and all ages - by Brooke - (Wed, Mar 05 2008)
    As i was reading these stories of other people having IC I realized many of you all are older with kids and all. I decided to write my story and show younger people they are not alone either. I am a 17 year old girl that has IC and it really affects me. [more..]
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