Living with LupusThis section is a place to share stories about Living with Lupus Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Lupus..almost impossible to diagnose I was diagnosed with Lupus over 16 years ago. I was fortunate that I had a very mild case. That is I thought I was fortunate until I found out that other docotrs did not always believe me when I reported my Lupus I was suffering only mild symptoms. That was until about 3 years ago wqhen my ankles swelled up so bad I could not walk as did my legs. I was also completely exhausted and tired of being called lazy by everyone. I went to yet a new internist and he did some tests and put me on cortisone since my kidneys were very involved. I have tried to go off the medicine several times but the ankles swell up immediately and as soon as I go back on it they go down. The fatigue is constant and I am now on disability as I also suffer from severe scoliosis of my spine and take strong medicines for the constant pain. I need help with the fatigue. If I go food shopping I need to sleep for 2 dasy afterward. Does this sound normal? Comments
January 2008
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