Living with Migraine

About three years ago, I woke up unable to move the left side of my body and with a headache I had never felt before. My mom called 911 and I had no clue what was going on.

The doctors first thought I had suffered a TIA (stroke), I went through the gammut of CT, MRI EEG, EKG, neuro tests..and a week later was sent to rehab at another hospital.

This has been occuring off and on for the past three years and July 28th of this year I was at the gym working with my personal trainer when out of the blue and without any warning the same thing happened, only this time I couldn’t talk!

Spent two days in the local hospital before they basically kicked me out because once again they couldn’t find anything wrong. This is also the 8th time I’ve been taken to the hospital for this.

I tried Depakote and the side affects were really bad, not to mention I was still getting these attacks.

Doctors still don’t have any idea what it is or even what type of Migraine it is, my first neurologist stated it was a hemiplegic migraine (one of the rarest types) and because of that I can’t take normal migraine meds - I ended up dropping her because she wasn’t attentive to my needs or concerns. Both my eye doctor, and a neuro-opthomologist stated in different exams that I didn’t have hemiplegic migraines. So now I have no clue and seems to me neither do they.

I have lost all my hearing and peripheral vision on the left side as a result!

Like I said previously - I’ve been hospitalized 8 times, in rehab for the left side 3 different times as an inpatient and 2 times as outpatient. All I can do when I get them is try to wait it out at home - because the hospital and doctors are fed up with me and there isn’t anything new that happens. So I have had issues with this more than 8 times!

Now they are getting worse and making me feel worse and like I can’t do anything without fear that I’m going to have an attack.

Not only have I lost the hearing (hearing aid doesn’t help) and peripheral vision on my left side but also my sensations in my left leg is off, my foot doesn’t respond to touch, and though I feel pressure I can’t tell you what is touching me leg (below my foot).

Frustrating but I’m not giving up just because the doctors around here have - gonna keep doing searches and research and hope I find something.