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This section is a place to share stories about Living with RSD
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Living with RSD for 13 years
by: Marie
on Tue, Jul 24 2007
I am a 30 year old stay at home mom struggling with RSD fibromyalgia, and depression everyday of my life. I have constant pain. I have tried all oral meds the Dr.s could think of but my stomach can’t handle them. I have had well over 30 spinal blocks, 1 stellate ganglion block and have had 2 radio frequency ablations. A few months ago I was told that there is a very high chance that my RSD has now went full body. My goal in life was to go to Med School but that is not looking so good. I put all my energy into just daily living. It is hard to make other people understand how hard it can be to live with chronic pain. I just want relief. I just keep hoping and praying that they find a cure and I can have my life back. Thank God for my husband, he is everything to me. He understands me and supports me. I just want to know what a life is like without all the physical therapy tens machines, fluidotherapy, and PAIN! I want my kids to have a normal mom not one who is always in pain. The thing I have learned from living with RSD is that you just have to take one day at a time.
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July 2007
- 11 year old daughter - by debbie o - (Sat, Jul 28 2007)
My daughter was diagnosed with RSD, after several months of being told it was “all in her head”. Thank goodness her first specialist sent her directly to physical therapy It was after xrays, MRI and EMG that we realized it was not broken, but that her hand had closed and would not reopen. Any touch would send her into a deep state of tears and severe pain.
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- finally diagnosed - by DB - (Thu, Jul 26 2007)
in March 2007 I fell at work and broke my foot I am an active 35 yr old and what a challenge this has been. Its been 5 months now and I am just beginning to take some steps without using crutches.
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- where am i - by Mary - (Thu, Jul 26 2007)
two and a half years after being diagnosed with RSD, friends, family, and assosiates are gone because of my emotional upheavel. where am i? where do i go? what do i do? i want to be myself again.
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- RSD sufferers please TRY HYPERBARIC OXYGEN TREATMENTS! - by LIANNA - (Wed, Jul 25 2007)
I already wrote my story earlier but I felt that I left some very important issues out and that is what you are all feeling which is unbearable pain and suffering. I was so bad that I could not even put my foot down or bend my knee to get up to go anywhere.
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- Just found out about RSD - by DW - (Wed, Jul 25 2007)
It all started when I work on the ramp as a fueler, that’s right fueling jumbo jets of major air lines. Well I was standing plane side talking to ramp agent, when another ramp agent came driving up from behind me so close that there was not enough time for the person I was talking to warn me. Before I knew it I felt my pants tug and turn to see this ramp agent smiling while he was on top of my foot. He drove over the back of my achilles and ankle trapping me under the tug vehicle.
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- RSD carpal tunnel? - by Susan - (Wed, Jul 25 2007)
Well back in 1998 i had carpal tunnel surgery (open). I had relief for a few years and slowly started getting that feeling back again. Dropping things, pain in shoulder/elbow etc. Always feeling i had to cradle my arm. My job of 14 yrs. is a phlebotomist.
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- Living with RSD for 13 years - by Marie - (Tue, Jul 24 2007)
I am a 30 year old stay at home mom struggling with RSD, fibromyalgia, and depression everyday of my life. I have constant pain. I have tried all oral meds the Dr.s could think of but my stomach can’t handle them. I have had well over 30 spinal blocks, 1 stellate ganglion block and have had 2 radio frequency ablations.
[more..]
- Re-occurring RSD - by JulieAnn - (Fri, Jul 13 2007)
I am a 55 year old RN who has had re-occurring RSD since 1993. It started with a left ankle sprain in 1990, which continued to resprain at least 3 times a year.
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- RSD - What Works for Me - by Gin - (Mon, Jul 02 2007)
I am a 30 year old female who developed RSD after a fall at work. I was working as a CNA and slipped in urine and sprained my ankle. After about three months of pain, missery, and questioning my problem I heard……we think you have RSD.
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- Right Foot pain, redness, swelling - by jep - (Mon, Jul 02 2007)
Hi, I need to know what WORKS - so Please post successful therapy (meds, PT, etc) stories here. For four months I have had right foot pain, redness, and swelling. My doc thought it was neuroma Foot doc said it was RSD.
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