Living with RSD

October 2007

• A Positive Outlook - by Jane - (Wed, Oct 31 2007)
  I was diagnosed with RSD last February, two months after undergoing discograms in my spine. Apparently the sympathetic nerve was bumped or nicked. The pain began in my right foot but soon migrated to the left foot and legs. [more..]
• Ducky’s Story - by Ducky - (Mon, Oct 29 2007)
  DUCKY’S STORY My name is Ducky, I have total body RSD, fibromyalgia, connective tissue disorder, and chronic fatigue, polyglycemia. I have internal organ involvement with the RSD, including but not limited to eyes, mouth, bladder, bowel, liver, ovary, gall bladder (since removed) all 23 teeth remaining (also removed). It is not fun but I have learned we can live with this disease and we can still do many things, the trick is to not dwell on what we cannot do but rather on the things we are still able to. [more..]
• finding relief from rsds pain - by Susan E. - (Thu, Oct 25 2007)
  I have been living with Reflex Sympathetic Dystrophy Syndrome for several years. Going in and out of hospitals for pain relief shots only for a couple hours relief. My husband was tired of seeing me in agony and feeling helpless. [more..]
• RSD - 20 YEARS - by SABRINN - (Mon, Oct 22 2007)
  I have lived with rsd for 20 years/17 diagnosed. My rsd is full body/systemic (1%) and fairly under control. My journey is fully documented (original medical records) and it is amazing at how many times it was missed. I could have been spared a lot of pain. I believe my journey can help. My case can be used as a teaching tool as well! We really do need all of the awareness raised as possible. Chronic pain is life changing. It breaks up families. It causes financial devastation. It causes depression In a small percentage of cases, even suicide. Rsd pain is rated higher on the pain scale than cancer pain. That demands immediate attention. I am willing to share my story/records/secrets to making it thru a day with anyone interested. [more..]
• My story - by Elizabeth - (Mon, Oct 15 2007)
  Two years ago this November I fell in a parking lot and caught myself with my left wrist. No big deal just sprain and a scraped up knee. Two weeks after my fall I was still in pain so I went to my doctor. We did x-rays and nothing turned up so he suggested I see an Orthopaedic specialist. After two months dealing with this doctor he told me that I needed a phsychiatrist. [more..]
• The RSD Hopeless - by BJL - (Thu, Oct 11 2007)
  In 2000, I got a flu shot for my job. I have a college education and worked for the Mental Health program in our county for years. Immediately following the flu shot, I had the worst case of the flu I ever had. Within two days I could not raise my right arm. My scapula winged and I had horrible pain the shoulder and scapula area near the spine. [more..]
• My 17 year old daughter has RSD - by Penny - (Mon, Oct 08 2007)
  My daughter was diagnosed with RSD in April 2006. She feel on her knee and had a small scratch. Within 2 days her leg was extremely swollen, shiny and even the slightest touch was painful. To make a long story short within 2 weeks the leg was so bad she was in a wheelchair. [more..]
• Low-dose Ketamine, it worked for me! - by Keith - (Sun, Oct 07 2007)
  I was fortunate to have been one of the first few patients to have this treatment back in early 2003. Back then there was only one Doctor in this country doing the ketamine procedure, Doctor H who is down in Hot Springs, Arkansas now. I was the sixth patient in the country to get it and received about 85% pain relief. [more..]
• My daughters RSD, facial & TMJ - by Julia - (Tue, Oct 02 2007)
  Jess is 23yrs. old and has had RSD for 4 1/2 yrs. She had TMJ sx. in 2003 in both joints. Three months after her sx. a lady broadsided her and the air bag hit her in the joint and ruined her sx. [more..]