Living with RSDThis section is a place to share stories about Living with RSD Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download I’m sorry for your pain of RSD/CRPS, lets fight this thing together!! I was injured over 3 years ago @ work when some equipment fell on my right shoulder & hand. I not only had the original tearing and damage within the shoulder, I immediately had edema, purple-blue skin mottling… my arm was about three times the size of my left, and extremely painful. I was diagnosed with RSD right away with the injuries too but for the first year treatment was extremely difficult due to the fact that my company was Self-Insured, and they refuse almost everything that they have to spend money on!! They have been so abusive, and have delayed my treatments, tests, and medications throughout this span of time. I had to have shoulder surgery in January of 2006 to clean-up the mess in it from the original injury. The bad thing is it doesn’t take the RSD away!!! I developed severe atrophy (wasting of muscle) in the right limb and live with a constant 10 out of 10 pain cycle!! for over 2 years I have only been able to use one arm, and now my other shoulder is injured due to wearing out and over-use. (which is common when you only have one limb that has to do all of the work). I have a total of 8 physicians and there will be three more coming on board soon. My doctors are all banding together now to fight for me to get the spinal stim placement done, but like I mentioned earlier my insurance company doesn’t approve much for me, which makes things much worse!!!! Their neglect is making things very bad!!!! I have also for the last 8 months been suffering from a severe skin infection on my right hand and wrist and forearm, due to the effects of RSD… my skin has been breaking down and I get many lesions that go deep down into the subcutaneous tissues, and I have been in-and-out of the ER numerous times for treatments!!! Over the past few months now I have been getting worse with severe neck and mid-back pain as well, my muscles feel very heavy, and I feel lethargic alot of the time now. Even though this has been the worst thing I have ever had to cope and deal with, I claw-in each and every day to keep up the fight (no this is not EZ) but I am trying some new things now, and I pray that there is going to be a cure for RSD/CRPS one day soon!!! The most important thing I have been learning with this is to try to eat as well as you can and try to find anything to take your mind away, even if for only a brief minute or so… there are times that i hold a small peice of plastic in my left hand and lightly snap-it, after about 10-15 min, it took my mind away from how extreme the RSD is making me feel!!!! I also have just started drinking a new product (which is also very difficult because I have to drink from a straw, with very little movement from my good arm). Also stayed informed and ask alot of questions. I started making a list of questions that I take to each doctor appointment with me (yeah, I know they don’t always know how to answer the question, but keep asking)!!! If you are battling with this disease, I pray and hope that you have someone in your life that can lend a listening ear , from time to time. Remeber that there are other people out here battling it with you… we are in this thing together!!! Take care and I hope to hear from anyone suffering with RSD/CRPS, your stories help me so much with my struggles!! Than You sooooooo much!!! kriskaleigh Comments
April 2008
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