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Living with RSD

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my story about rsd
by: amy on Tue, Sep 16 2008
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hi my name is amy harshey and i am a 40 yr old woman from pennsylvania, I also am a patient with rsd cprs. my story begins about 3 1/2 yrs ago i was having problems with my left foot in the morning i couldn’t stand on my foot without shooting pain in my heel so i went to see my dr. and he sent me to a podiatrist who stated i had planter faciatis immediately started with injections never worked so the only other option was surgry to release the tendons, so we did and my goodness what a relief until i started experiencing hot burning sensation in the left foot, needels pinching, couldn’t touch my foot, then winter came and my foot was so cold to the touch felt like it just came out of the freezer after 4 hrs, so of course your sent to do all these tests and x-rays, finally met a dr. who said amy you have what they call rsd a disease which will never go away, I have read and heard of some horriable things of this disease, still i have only met one person with this disease and she seems to be able to get around fine, I however am still in a boot to protect me from falling and breaking my leg i have decreasing muscle tone in my left leg, not to mention how many pills does one person have to take for this disease to stop or try to controll the pain? my stomach is a bundle of nerves not to mention what it looks like inside from all the pain meds and ect, constantly either have diarrea or constipated, I have back problems now from wearing the boot and walking lobsided I just can’t seem to win, is there any help we have tried everything, and i feel so tired always don’t want to do anything or go anywhere just because it hurts always.


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  1. Mon, Oct 20 2008
    This is for Amy. Hi Amy my name is Alexandra. I have had Fibro since I was 23. I just turned 40 last week. I was doing some research because I am hav...Read
  2. Sun, Sep 28 2008
    Hey Amy, My names Catherine and I have been living with rsd for 22 years now. I'm in the process of writing a book on RSD/CRPS. And how it has change...Read
  3. Wed, Sep 17 2008
    Hey Amy, my name is Steve Weddington from SC. I crushed my left leg at work in January and have the exact same RSD in the same place as you. Also the ...Read

September 2008

  • 20 years old n have rsd - by niki w - (Mon, Sep 29 2008)
    Hi i just got out of hospital after being diagnosed with rsd. it started about 4 months back with my right ankle starting to ache, then it progressed enough for me to go to the docs, i was prescribed painkillers and told to get on with it, i then went back and had an x ray which showed the start of arthritus. [more..]
  • rsd in left leg - by pss - (Mon, Sep 29 2008)
    I am a 38 year old female with rsd and I have been with this for 3 years now. At first I was told that I may have had just a large hematoma and that over time it would heal. Ha not so , now I am on so much meds. that I just hate my life style. [more..]
  • Ten years with RSD - by Kim - (Mon, Sep 22 2008)
    Hi, my name is Kim and I’ve been living with RSD for ten years now. I was an RN and fell at work. I broke my wrist and immediately had severe swelling, sensitivity to hot and cold, color changes and sensitivity to touch. [more..]
  • 23 YR OLD WITH BROKEN ANKLE - by DIANA G. - (Mon, Sep 22 2008)
    Hi my name is Diana I live on Long Island NY and I fell coming out of my car on a parking lot of a store on 7/13/08 (I was getting a birthday cake for my mom) there was a sewage drain below ground level with cracked and uneven pavement around it. As I was comming out of my car and put my left foot on the ground and release the other foot from the running board of the car I fell and my ankle broke [more..]
  • RSD/CRPS The Invisible Destroyer - by Keith - (Fri, Sep 19 2008)
    Greetings all, My name is Keith. I am now 54 years old. I have spine degeneration issues that led to a spinal cord injury in my cervical area from a hard coughing spell about 11 years ago. [more..]
  • a diagnoses of RSD is scary - by kjk - (Wed, Sep 17 2008)
    my name is not important my story could be. maybe it can help someone. i am a female, over fifty, i fell and broke my arm, both bones. [more..]
  • my story about rsd - by amy - (Tue, Sep 16 2008)
    hi my name is amy harshey and i am a 40 yr old woman from pennsylvania, I also am a patient with rsd, cprs. [more..]
  • This is just no way to live - by TJ - (Tue, Sep 16 2008)
    Back in 1983 I was involved in a single car accident at the time I had a great job driving a cement mixer the pay was good the people I worked with were a good bunch of guy’s I had been there for six year’s life was great, I had a great credit score and was two week’s away from buying a cabin which I had been renting. [more..]
  • Feels like it’ll never end - by michelle - (Mon, Sep 15 2008)
    Hi, I got hurt at work loading a semitrailer in a discount/retail store. First dr. I saw said it was nothing, put an ace bandage around my left knee at a bending restriction on me and sent me back to work with a follow up app. in one week, not even an x-ray. [more..]
  • rsd sucks - by kim - (Thu, Sep 11 2008)
    i had surgery to repair my tendon in my right thumb 4/23/08. started physical therapy and it was going ok until 6/13/08 when I started having pain in my hand and my arm. The surgeon diagnosed me with rsd and started me on 300mg nuerontin 3x aday. [more..]
  • My Broken Foot - by keith t. - (Wed, Sep 10 2008)
    i was attacked one evening and i received a broken disslocated ankle with torn muscles as well. [more..]
  • My story - by Chelle - (Tue, Sep 09 2008)
    I fell in at church one Sunday off of my high heels. I was taken to the ER and they diagnosed me with a sprained foot and put me on crutches. [more..]
  • This is my 4th bout with RSD - by Mary Ann - (Tue, Sep 09 2008)
    In 1992, I broke my leg and ankle. It wasn’t until about 2 weeks after the cast was removed that the symptoms began. Burning pain, color change of skin, etc. [more..]
  • RSD Surviver - by LG - (Tue, Sep 09 2008)
    I was in a bad car accident. I’ve have several operations.I have five children and was on heavy pain medicine.I was suffering from this very painful condition up until 3 months ago when I started drinking the Acai berry juice. [more..]
  • more treatment - by wendy - (Mon, Sep 08 2008)
    hi my names wendy i was diagnosed with RSD in feb 08 and i wrote on here then this is jus an update .i have now had 1 nerve block that didnt do anything for me ,now i have to wear splints on my fingers as they are bending in the wrong direction and twisting [more..]
  • Wife of a husband W/ RSD - by Shari - (Mon, Sep 08 2008)
    Hi everyone my name is shari I my husband lou has been living with rsd for almost 4 yrs now and he’s been absolutely going crazy he had an injury with his left foot at work where a box of bolts broken open form the bottom and fell on his foot needless to say it approx about 50lbs. [more..]
  • After the fall - by Mark C. - (Thu, Sep 04 2008)
    I had a fall in April 2005 and by June, I had developed AVN (avascular necrosis of the femoral head). The surgeons did not want to do surgery on me until the condition advanced the next year. I then had a heart attack was on blood thinners and the surgeons wouldn’t consider surgery until I was off of the thinners. [more..]
  • RSD and my life now - by Cheryl - (Tue, Sep 02 2008)
    I am now a 50 yr old woman, about 11 yrs ago I fell in a parking lot, I not only fell but I bounced up and hit the street again. That was July 4, 1997. Since hat date I have had 3 knee and back surgeries, the pain I was in was something I never had before. [more..]
  • RSD - by Cathy - (Tue, Sep 02 2008)
    My 17 year daughter is suffering with RSD (her second episode) after 2 surgeries from a condition called rigid flat feet where the bones in your feet are fused together. [more..]
  • wife of husband w/RSD - by tam - (Tue, Sep 02 2008)
    Hi,everyone! i’m sorry for all of you. i don’t have RSD but, my husband does. it’s been over 5 years now. [more..]

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