|
This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
You may also Help others by sharing your story.
To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.
CPRS Type II
by: Anthony
on Thu, Oct 08 2009
I was injured on thr job in 1986 using a weedeater. I had carpal tunnel release in 87 and had burning pain for 3 years. I tried to keep jobs but ended up going to school for electronics. All the time suffering with this unknown pain. I then got a job I though I could do, only to find myself pushing to keep food on the table and the lights on.
In 1995 I started working and pushed myself so hard I tore my shoulder out of the socket. This took only 5 to 7 months. I stopped working on 10/21/96. I have had 10 surgeries from carpal tunnel, unlar nerve transposition 3 times, radial nerve work, 2 shoulder surgeries and brakil plexas fixed. After all that the Dr. had notice that I had also ruptured my CMC joint of the thumb. I have been in rehab 2 times for taking too much pain meds. I was also sent to many psych Dr’s to make sure I wasn’t taking my meds for pleasure. At the time I was hurting so bad that no one was buying the extreme pain story.
I have had 18 doctors treat me with 5 different pain managers. For all the people suffering with RSD/CPRS I feel your pain. My story is just the tip of the iceberg, there is too much to tell.
I have lost my family do to my inability to deal with my pain. I have also lost my teeth and good looks to medication. For all who read this I employ you to hang in there. Some of us have horror stories to tell and I hope mine will keep someone going. I do know someone that did not make it just remember there are always bad days. There are good days too.
Comment on this
Comments
There are currently no comments.
October 2009
- Shanna’s Days - by Shanna - (Thu, Oct 29 2009)
It is so hard to remember that there was a time when my life was normal? 3 years ago I had to have back surgery I had exhausted all other alternatives.The surgery went well& I was released 24 hrs later only to be rushed to the hospital 5 days later with an impacted bowel.
[more..]
- Lucky/early diagnosis - by Lori - (Wed, Oct 21 2009)
May 31,2009 I broke my ankle. The pain was immediate but the diagnosis was slow coming. My Physical Therapist on my firs visit, identified the RSD he understood the urgent need for early neurological assistance. He saved my life! From my ankle up to my knee the skin was shiny and hyper sensitive. I could no wear long pants, socks, I could not even wear the boot/cast, I was supposed to wear. I was not sleeping because I could not lay my leg on the bed.
[more..]
- they think its RSD - by JG - (Fri, Oct 16 2009)
A year ago when I went to walk I had pain on the outer edge of my ankle but after “walking it out” it would go away. In June it started throbbing and not going away. I went to the hospital and they put my ankle in a brace and told me to ice it.
[more..]
- New at this-RSD - by Carmen - (Tue, Oct 13 2009)
I broke my heel in May 09. I never seemed to be making much progress. I had (still have ) numbness on the left side of the left foot.
[more..]
- why - by dayle - (Fri, Oct 09 2009)
my name is dayle-always a very active on the go person. nothing could stop me. even being sick, surgeries, etc. in my life….couldn’t keep me down. until one day totally changed my entire life. i was told i had RSD type II…severe nerve injury,
[more..]
- CPRS Type II - by Anthony - (Thu, Oct 08 2009)
I was injured on thr job in 1986 using a weedeater. I had carpal tunnel release in 87 and had burning pain for 3 years.
[more..]
- RSD or Chronic Regionial Pain Snydrome - by Beverly (BEV) - (Wed, Oct 07 2009)
I am a 43 yrs old female and 7 months ago, I was injured while driving a School bus with kids aboard, when a Deer Ran out in front of my Bus Causing my left arm (elbow) to hit the Heating Panel I have lost all 3 of my jobs
[more..]
- RSD - by Linda - (Mon, Oct 05 2009)
I had a fracture on the side of my foot, wore a boot cast walker and almost immediately experienced more pain. My doctor put a hard cast on my foot/leg for 6 weeks, but the pain only increased. He took off the cast, my foot up to my knee was red, swollen and very shiny, and oh so painful, couldn’t even touch it.
[more..]
- SADIE’S SUFFERING - by Laura - (Mon, Oct 05 2009)
My daughter was just diagnosed with RSD. She is only 10 years old. I’m having a difficult time trying to help her with her pain. She goes to a school that does not have an elevator and only has stairs. Her classroom is
[more..]
- dont know for sure ???? - by penney - (Fri, Oct 02 2009)
Hi my name is Penney I had foot surgery on Aug. 10th. My foot stayed swelled, I had burning pain in my big toe and 2nd toe, also felt like needles were being stuck through the top of my toes, I assumed it was because of nerves being messed with during the surgery, I wear a
[more..]
- Living in fear - by Brit - (Thu, Oct 01 2009)
My name is Brit and I’ve been diagnosed with RSD for over a year and a half. I went to Dr. Sherry’s program in Phily. It really helped, but I still get attacks and it recently just spread from my arm and back to my leg.
[more..]
- rsd/cprs type II - by Dawn from Michigan - (Thu, Oct 01 2009)
1997 was injured at work. 2000 I had to have surgery on my right arm, medial epicondilis ulnar nerve transplant. Took 6 months before I returned to work, unfortunately my employer would not
[more..]
|
email this
