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This section is a place to share stories about Living with RSD
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they think its RSD
by: JG
on Fri, Oct 16 2009
A year ago when I went to walk I had pain on the outer edge of my ankle but after “walking it out” it would go away. In June it started throbbing and not going away. I went to the hospital and they put my ankle in a brace and told me to ice it. When I put ice on it, it felt like it was burning through my skin. I have had a bone scan, xray and MRI and two doctors think I have RSD because when one doctor saw me my leg was cold and a different colour and the extremity of the pain. My ankle is in constant pain, my knee and behind my knee is in pain, I sleep all the time, my back hurts and just recently my arms and hands go numb when I sleep. I have an appointment with a neurologist in a month and have read up on RSD but seem to lack some of the symptoms. I am in constant pain, frustrated, don’t sleep well due to pain in arms and foot, have headaches, and feel housebound. I no longer work (am a teacher) and the simplest things exhaust me or cause me pain. Can anyone relate?
Comment on this
Comments
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Fri, Oct 23 2009
Ya know, it probably is RSD ..Don't believe everything the Dr's tell you, if they try to tell you it is just pain that will subside on is own. Read e...Read
October 2009
- Shanna’s Days - by Shanna - (Thu, Oct 29 2009)
It is so hard to remember that there was a time when my life was normal? 3 years ago I had to have back surgery I had exhausted all other alternatives.The surgery went well& I was released 24 hrs later only to be rushed to the hospital 5 days later with an impacted bowel.
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- Lucky/early diagnosis - by Lori - (Wed, Oct 21 2009)
May 31,2009 I broke my ankle. The pain was immediate but the diagnosis was slow coming. My Physical Therapist on my firs visit, identified the RSD, he understood the urgent need for early neurological assistance. He saved my life! From my ankle up to my knee the skin was shiny and hyper sensitive. I could no wear long pants, socks, I could not even wear the boot/cast, I was supposed to wear. I was not sleeping because I could not lay my leg on the bed.
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- they think its RSD - by JG - (Fri, Oct 16 2009)
A year ago when I went to walk I had pain on the outer edge of my ankle but after “walking it out” it would go away. In June it started throbbing and not going away. I went to the hospital and they put my ankle in a brace and told me to ice it.
[more..]
- New at this-RSD - by Carmen - (Tue, Oct 13 2009)
I broke my heel in May 09. I never seemed to be making much progress. I had (still have ) numbness on the left side of the left foot.
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- why - by dayle - (Fri, Oct 09 2009)
my name is dayle-always a very active on the go person. nothing could stop me. even being sick, surgeries, etc. in my life….couldn’t keep me down. until one day totally changed my entire life. i was told i had RSD type II…severe nerve injury,
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- CPRS Type II - by Anthony - (Thu, Oct 08 2009)
I was injured on thr job in 1986 using a weedeater. I had carpal tunnel release in 87 and had burning pain for 3 years.
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- RSD or Chronic Regionial Pain Snydrome - by Beverly (BEV) - (Wed, Oct 07 2009)
I am a 43 yrs old female and 7 months ago, I was injured while driving a School bus with kids aboard, when a Deer Ran out in front of my Bus Causing my left arm (elbow) to hit the Heating Panel I have lost all 3 of my jobs
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- RSD - by Linda - (Mon, Oct 05 2009)
I had a fracture on the side of my foot, wore a boot cast walker and almost immediately experienced more pain. My doctor put a hard cast on my foot/leg for 6 weeks, but the pain only increased. He took off the cast, my foot up to my knee was red, swollen and very shiny, and oh so painful, couldn’t even touch it.
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- SADIE’S SUFFERING - by Laura - (Mon, Oct 05 2009)
My daughter was just diagnosed with RSD. She is only 10 years old. I’m having a difficult time trying to help her with her pain. She goes to a school that does not have an elevator and only has stairs. Her classroom is
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- dont know for sure ???? - by penney - (Fri, Oct 02 2009)
Hi my name is Penney I had foot surgery on Aug. 10th. My foot stayed swelled, I had burning pain in my big toe and 2nd toe, also felt like needles were being stuck through the top of my toes, I assumed it was because of nerves being messed with during the surgery, I wear a
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- Living in fear - by Brit - (Thu, Oct 01 2009)
My name is Brit and I’ve been diagnosed with RSD for over a year and a half. I went to Dr. Sherry’s program in Phily. It really helped, but I still get attacks and it recently just spread from my arm and back to my leg.
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- rsd/cprs type II - by Dawn from Michigan - (Thu, Oct 01 2009)
1997 was injured at work. 2000 I had to have surgery on my right arm, medial epicondilis ulnar nerve transplant. Took 6 months before I returned to work, unfortunately my employer would not
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